Tag Archives: Cerebral palsy

Update on George

I thought it time I brought you the latest news and update on Little George, who’s almost 13 years old now and definitely not little. He’s turning into a very handsome young man.

It’s hard to believe it was 7 years ago when all the family were busy crowdfunding to raise the money to send my nephew’s son, who was born with cerebral palsy, to St Louis in the USA for an SDR operation. An operation that was a success but it later transpired he had misaligned hips too. Consequently, he had to undergo major surgery again to correct the problem. You may recall the photo of him with a metal frame pinned through his body.

Last year, after 5 years of 3-monthly trips to the Bristol Children’s Hospital, major hip surgery, an incredibly tough rehab, setbacks and a pretty worrying time all round, in yet another operation, all the metalwork in his body was successfully removed. His hips had recovered 100%, his left leg completely healed, and a perfect hip Xray for the first time. At last, he had a good range of movement, leaving his surgeon and his parents very happy, especially being told George should never need any more surgery. It was the best news ever for his parents.

Let’s be fair, he and his parents have endured an incredible amount over these 12+ years. A lot of worry, a lot of expense, and a lot of hard work on all three’s behalf with the constant physio George needs. And that help will be needed for life.

But George always amazes us. He rarely complains, he pushes himself as hard as he can as he so wants to be able to walk and be as independent as he can be given the circumstance. He loves his little sister, enjoys jokes, playing games, teasing and having fun, like any child. He enjoys school and has lots of friends but along came lockdown.

He struggled with it at first, like all teenagers missing his friends, the play and the fun, the lessons. And his parents miss his carer. He’s a big lad and heavy to lift now and needs a lot of help, so his parents have had their work cut out. I haven’t seen him since Christmas, but my niece tells me he’s now coping well and still the happy, giggly George we so love.

He’s settled down to doing his schoolwork at home, usually with his little sister sitting at the table helping him. But he does miss surfing, which he loves, always going into hysterics whenever he has a wipe-out, and can’t wait to go again.

 

And he missed his outings to his favourite restaurant where he always has his favourite meal including a hot chocolate. I was delighted to hear last week that he could finally meet up with his PA, who took him there for lunch, and guess what he ordered? His favourite, oh, and a hot chocolate! So for him, and the rest of us, life is slowly getting a little normality back.

George and his family live in a lovely part of the North Devon coast, which has meant they have been able to have many pleasurable secluded walks but because of being home all the time, not being able to have his regular physio sessions, and due to the fact that he has grown so much, his legs are stiff, making his walking extra hard work. What doesn’t help is that he’s also outgrown his trike which allowed him some independence, and he’s now in urgent need of a new one.

A Tomcat Bullet has been trialled. George loved it as he is unable to ride a standard bicycle. For the first time since hip surgery he was able to peddle independently. A huge achievement for him. You can imagine the huge smile on his face. But like all things like this, it doesn’t come cheap, and with his parents being furloughed, money is tight. Charities here in the UK have been approached, but because of Covid, they are not accepting applications. But not to beaten, the family are crowdfunding again in order to buy one. The benefit of this trike is it grows with him up to a maximum size of 6’2″ meaning he shouldn’t need another one after this. We’ve still a long way to go, but we’ll get there. And no doubt, sister Daisy will enjoy rides on it too.

Kit Domino’s Website and Blog

Rain, Rain, Go Away…

At last April is here. Spring! Except here, spring is rather slow to get going, thanks to all the rain and wind and snow. Even this past weekend, Easter (I hope you all had an enjoyable one), parts of the UK experienced a white Easter, though not for the first time. Here where I am in the West Country, we didn’t have snow but it rained like it was never going to stop. Which means… what I had hoped to enthral you all with on this post hasn’t happened.

Yes, I’m talking about the garden revamp. It has been such a horrible winter, far too cold and wet for either of us to do anything out there apart from pruning my buddleia and a fuchsia and pottering in the new greenhouse bringing on new seedlings and plug plants. The ground is so sodden and heavy it’s going to take a lot of drying out before we can even contemplate putting a fork or spade in. So far this spring we only been able to enjoy a morning cup of coffee out there once. Usually by now I’m out there every morning having my early morning cuppa. Thus, apart from cursing the weather, it’s been a month of more planning and ideas and thoughts as to what we intend to do both outside and indoors. We keep putting off the dreaded downstairs makeover, at least until such time as the garden is good and the central heating can be switched off.

Last week saw my mother’s 92nd birthday, so a jolly family get together to celebrate ensued, with my brother coming over from Spain for a few days’. It was a small gathering this year, just Mum, us for children and husbands. It’s so good for us all to be together sharing a lot of laughs and memories along with the chocolate birthday cake. I do wish we could get together more often.

I do want to share with you is the latest update on my great nephew, little George, only he’s not so little any more. Following major hip surgery two years ago, you may recall he needed further intervention late last year as bone on one side of his hip/leg hadn’t fused properly, causing him pain and a reluctance to walk or do his exercises. I’m pleased to report the second surgery went far better than expected. All the metal inserted on the right-hand side has been removed and a small plate inserted on the left side to encourage the last bit to mend. Now there’s no stopping him. He asks to walk himself most of the time, using his walker instead of the wheelchair, becoming more and more independent, although he’ll never be totally and will always need the walker. And he’s just as mischievous and cheeky as ever!

Later this month he’s off to Florida, one of eight lucky children, for a 2-week vacation to Disney World thanks to a local charity that has been doing this sort of thing for disabled youngsters for 25 years. He is going to have one amazing trip.

Kit’s Website and Blog , Kit’s Kitchen  Kit’s Art  Site

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There’s Always Hope

I know you didn’t expect to see me here today but Lavada has kindly stepped aside to allow me to post a special message of hope, faith, charity, courage and determination that has turned the life around of one special … Continue reading